Posted by: Thixia | October 27, 2008

Spasticity in MS 8 of 9

Interview: Giulio Adamo,  Genoa, ItalyMS 

 

Charming, outgoing and always ready with a oneliner – his speciality? – telling jokes in Genoese dialect! Giulio worked for years as a truck driver.  His first MS symptoms were attributed to tiredness associated with long road trips and then he was misdiagnosed with a back problem.  In 1991 he was finally diagnosed as having MS.  Giulio experienced spasticity after only a few years with MS, in 1996, and since its onset it has been a constant presence. 

 

How would you describe your spasticity?

 

Spasticity is a very annoying problem and it affects my left hand, arm and both legs.  It feels like my arm retracts with cramps and my hand tends to close up into a fist and I can’t reopen it.  My legs are very rigid. 

 

You’ve been dealing with spasticity for 10 years now.  Has it changed in any way over time?

 

Unfortunately it has only worsened with time.  Personally, I’ve never experienced periods of improvement, even if I’ve tried different therapies and devices.  For example, at night I use a device that keeps my hand open.  It gives the slightest bit of relief but actually doesn’t help too much. 

 

Are you taking medication for spasticity?

 

I’m taking baclofen.  In the past I even tried the baclofen pump.  The point of it was to benefit from the slow release of medication but I still couldn’t tolerate it.  I was always tired and weak and most of the time felt like jelly.  So I had the pump removed. 

 

Have you ever tried an alternative therapy?

 

Sure.  I’m currently trying acupuncture.  My rehabilitation physician suggested that I try it.  I began three weeks ago… let’s see what happens! For now it seems to be working.  At night my hand is less painful than it usually is.  Maybe the needles relax some parts of the body.  I’ll try everything! I’m not planning on giving up. 

 

Do you do physiotherapy for spasticity?

 

Yes I have had physiotherapy.  I was prescribed physio three times a week for three months.  I also did occupational therapy at the specialised MS rehabilitation centre I attend.  I think it definitely is important to try different treatments, even if, for me, I still haven’t found the solution for my spasticity.  Unfortunately spasticity is here and it looks like it’s going to stay.

 

 

 

 

 

 

Compliments of:

 

Multiple Sclerosis International

Federation (MSIF)

 

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Categories

%d bloggers like this: