Spinal Tap – Bonnie’s

Bonnie’s Lumbar Puncture (Spinal Tap)

 

 

I was booked for my lumbar puncture while I was still at the neurologist’s office. 

 

The receptionist said “Drink a lot of Coca-Cola during the day before your lumbar puncture, as well as on the day you have your lumbar puncture, and on the morning before you actually have your spinal tap”.  She continued, “The more coke you drink the better it will be afterwards.”  She also told me not sit up for several days afterwards and to have someone drive me home after the lumbar puncture was performed.  I was to stay as flat as possible, for as long as necessary. 

 

I kept thinking that ‘Lumbar Puncture’ sounded so ominous.  I knew that lumbar meant the spinal cord and that puncture meant hole.  I wondered who would knowingly want to have someone create a hole in any area of their spinal cord.  Then I suddenly realized that I was one of those crazy people!  I wanted that hole.  I wanted that diagnosis

 

My husband stayed home from work to be on hand to drive me to the hospital for the spinal tap and home again.  We placed blankets and pillows in the back seat of the car the evening before, so that I could lay down all the way home, which was about an hour away.  We also stocked up on plenty of coke to see me through this very scary procedure. 

 

I had heard horror stories from people had had spinal taps and from people who knew people who had had spinal taps.  Not one of these accounts was pleasant.  I was quite frankly, very shaky going into this situation.

 

Drinking coke at 6:00 AM, on the day of my Lumbar Puncture, was difficult.  I arrived at the hospital at 8:00 A.M. and went to the day surgery department.  Soon I was directed to a private room.  The nurse presented me with the usual hospital gown with the gaping opening in the back, and told me to change into it ‘with the opening toward the back’.  Further instructions stated that I was to wait on the bed and the doctor would be with me shortly. 

 

Then the nurse proceeded to get out a sterile pack wrapped in green material.  She donned vinyl gloves and carefully and methodically opened the pack and spread the contents on a metal tray that had also been in a sterile green wrap.  She cautiously arranged two syringes with very long needles, two small metal bowls, one large metal bowl, a pair of tongs, some gauze, and various other items on the tray.  I kept looking at those syringes.  I couldn’t take my eyes off them.

 

The neurologist breezed in and donned his rubber gloves and directed me to sit on the side of the hospital bed.  The nurse then rolled a hospital food table in front of me, and put a pillow on it.  The doctor told me to lean across the table and hug the far side.  It was all very bewildering.  All accounts that I had heard involved the patient laying on their side, curled up in the fetal position.    This was very different.

 

I had heard awful stories about patients experiencing a great deal of pain when they felt the needle being inserted.  In my odd position I felt the doctor’s cool fingers on my back, followed by a cold sensation of the solution which he used to disinfect my back.   While I waited for the needle insertion the nurse held the bottle of coke beneath my head and indicated that I should sip from the straw.  The doctor and I carried on a conversation of small talk.  I kept wondering when he was going to insert that long needle into my back.  After a short time the doctor said, “Okay, all done.  Please lay down on your side for a few minutes.” 

 

I hadn’t felt the needle.  “Are you really finished.”  I asked.

 

Whereas he chuckled lightly and said, “I do it differently than most do.”  He took of his gloves and said, “Phone and make an appointment when you get home.  See you then.”  And he walked out the door.

 

When I arrived home my children had brought the TV upstairs and had arranged the living room as a temporary hospital room.  They had also rented a few movies to be viewed during my recovery.

 

For the next few days I lay around watching TV, reading, sleeping, and sipping coke.  I seldom had to get off the couch.  When I did I received a piercing headache for my efforts.  One of my children held a glass of coke and a straw for me to drink until the headache waned.  I was served all my meals on the couch.  I slept a great deal.

 

I did experience some dizziness and headaches when I stood or sat up.  I am sure that the bad experiences that I could have experienced were diminished because of the coke and not having to get up too often. 

 

Responses

  1. Hi Bonnie,
    I am very impressed with the skill of your doctor. When I had a lumbar puncture, it was done by a junior houseman in an English hospital, who had never done one before and was talked through it by a senior consultant. It was done during a heavy thunderstorm, the nurse who was supposed to be holding my hand was scared to death of thunder, and the first time the needle went in, it hit a nerve and made my leg jerk so hard it hit the wall. He did eventually get it right but I had no advice on after care that was explained to me and I was quite ill for a few weeks afterwards.
    However, since what they had been looking for they didn’t find, I guess I was lucky not to be worse off.
    Best of luck to you,
    cheers,
    Viv

  2. Hi Viv,

    I have heard so many horror stories about lumbar punctures. Yes, I was very fortunate that my doctor was creative and thought of a new way to do a spinal tap. His, after care was right on.

    Thank you for your comment.

    Bonnie

  3. Hi, I had my lumbar puncture today and my experience was one of the more no so pleasant ones.

    First off, I lay on my stomach while they inserted a very long needle into my back. I actually felt the needle – not any pain, but definitely pressure.
    I could feel it being twisted about a little bit, which was even more uncomfortable.

    Several times I did the leg jerk thingie too and let out a little wail each time. It felt as if I were being electrocuted with tiny pulses.

    They could only get small amounts of fluid to pass through the needle, so I was instructed to then turn to my side in a fetal position. I did that and they wanted me to cough, to breathe deeply or keep talking so that the fluid would be released more steadily.

    It was daunting. While I can’t say it was painful, it was surely not pleasant. Afterward they informed that while they couldn’t get the amount of fluid extracted that they wanted, they have enough to take the tests.

    I was satisfied with that and wanted to run out of that room. When one of the assistants lowered the table I was laying on, I feel soooo dizzy that it felt like I was having an out of body experience… it was weird vertigo.

    Afterward I was taken to my recovery room. At that point it was bliss. I had a small private room with a TV, they dimmed the lights for me, gave me two warming blankets, comfy socks, and plenty of healthy foods and Coke.

    I rested for 4 hours which made me feel better all around. While my back is still somewhat sore right now, I’m happy it’s all over.

    Oh – the reason why I had to have the lumbar puncture in the first place was because one morning I woke up and couldn’t use my right hand. I lost mobility and couldn’t pick up my phone or turn off my alarm clock with my right hand. I was petrified. I thought I was having a stroke… so I got up, dressed myself with my left hand and actually drove myself to the clinic.

    The residing physician wanted an MRI done immediately and the neurologist wanted tests done immediately to rule out a minor stroke or MS.

    I see him next month and am praying that it’s nothing serious. I am too young for strokes, but it was soooo scary. Eventually that day, I slowly regained mobility in my right hand, but nonetheless when you all of a sudden can’t use a body part, it creates panic.

    Justifiably so…. if I can, I’ll come back to let you know what the results are come next month.

    Blessings to you both!
    Angela

  4. So what were the results, and did it influence your choices of treatment?

  5. I elected not to have the spinal tap. I went straight to the injection treatment, later I took the oral treatment of prednizone. why do we need the spinal tap?

  6. Hi Bonnie,

    So happy I found your site tonight and read this article you wrote about your lumbar puncture. It is very possible that I will be experiencing this test next month and I have been worried sick about the possibility. I know that I won’t have the same skilled neurologist you had but hopefully someone nearly as skilled! All the hints about the Coca Cola and the preparations beforehand (your family is simply wonderful) help me to know that I will be able to do this! Thank you so very much! Lainie

  7. Hello, I am scheduled for a LP on 3-14-09, drinking Coke, can it be Diet Coke???

    Thanks,
    Kimberly

  8. You are very welcome. I would be please if you could let me know how your spinal tap goes.

  9. In truth people with MS really don’t have to undergo a spinal tap any more. I did because MRIs were not available in my area. For, me the spinal tap was very conclusive that I have MS. Be careful of taking prednisone for the long term.

  10. The results of my spinal tap were very conclusive that I have MS. The treatment wasn’t available for less than $16,000 a year and the Canadian medicare was not covering that kind of treatment at that time. Therefore, I did not start on any treatment. A few years later the Canadian Medicare Association covered all treatment therapies for MS patients. I started on Copaxone at that time, and only had to pay 10% of the cost.

  11. Thank you for that detailed discription of your experiences. I would really like to hear from you again.

  12. A lumbar puncture is performed to check for special proteins in the CSF called immunoglobulins. These proteins are produced by something called ‘B lymphocytes’. B lymphocytes are overactive in the central nervous system of a person with Multiple Sclerosis; therefore a high level of immunoglobulins in the spinal fluid is an indicator of MS.

    I have another blog that I have been posting to for the last three years. It has much more information on it. I am sorry but it has become a chore to attempt to post information to both blogs. Therefore, I have decided to quit posting to this blog and post exclusively to my older blog. The URL for my other blog is:
    http://multiplesclerosis.blogharbor.comPlease enter this new blog into your favourites.

  13. hi Bonnie
    never heard of the Coke ritual before. Had my spinal tap in July 2008 at King’s College Hosp London, neuro wing, as an afternoon patient. After slipping into an open-back gown, I was told by 2 newish male doctors to lay on my side on cubicle bed.
    First came the lumbar area cleansing, then a local anaesthetic, followed by careful insertion of syphoning syringe. Extract 20mls sample. small dressing over puncture, job done. Was advised to “relax on your side for 20mins”. Only felt the local jab. The secret is to NOT know/see what kit is being used behind you.
    My wife drove me home. no aftermath.
    Results took about 6 weeks…. disgustingly slow… jargon about some ‘bars’ showing up – but no hint of MS, yet 3 MRIs followed. The last one in Feb was the clincher.
    so sorry your own LP ordeal was lengthy

  14. A few years back i also had a lumbar puncture as one of the first test for MS and i had a bad experience after it was done i didn;t have alot of pain during but within 4 hrs of being home i became very ill.. i went to outpatients 3 times in the period of 3 days with doctors giving me pain meds but no answers .. the 3rd day i was soo ill i could stand without being physically ill and the headache brought me to my knees,the nurse was unable to get my vitals.. thank goodness for dr danny who actually knew what i was going through he had to preform a blood patch.. which worked wonderfully.. he said the doctors that sometime preform lumbar punctures use too big of a guage of needle when someone is petite..

    i will never get another

  15. I had a LP done by a resident who was just finishing up. She rocked it. Two observers, nurses who’d never seen it done before. No pain thanks to the local. No aftermath. Nice clear fluid and no positive result – I was three weeks into my symptoms by then, attack over. I got bored about an hour after the puncture and because I wasn’t eating the horrid hospital food, my partner and I went for a ‘walk’. There was a great Thai place not far from the hospital so we snuck out and had dinner. I guess I was one of the lucky ones.


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