Comments on: About Bonnie http://scamparoo.wordpress.com All About MS Sat, 12 Dec 2009 16:50:29 +0000 http://wordpress.com/ hourly 1 By: scamperoo http://scamparoo.wordpress.com/about-bonnie/#comment-867 scamperoo Sat, 21 Nov 2009 19:26:40 +0000 http://scamparoo.wordpress.com/about-bonnie/#comment-867 I don’t feel that you would necessarily get staph with all injectable medications for MS. Could you possible get a second opinion for another neurologist? I don’t feel that you would necessarily get staph with all injectable medications for MS. Could you possible get a second opinion for another neurologist?

]]> By: Merryn McArdle http://scamparoo.wordpress.com/about-bonnie/#comment-821 Merryn McArdle Sun, 09 Aug 2009 01:12:01 +0000 http://scamparoo.wordpress.com/about-bonnie/#comment-821 Bonnie, new blog not active in Aust. I was on Betaferon (3 years) but due to severe skin reactions (golden staph) my nuro took me off it and said same would happen with any other injections. Now only treating symptoms with steriods. Just finished 5 days. Feel horrible. Mouth ulcers yuck! Feel like I should be on something. Still staggering around. Very depressed. Bonnie, new blog not active in Aust. I was on Betaferon (3 years) but due to severe skin reactions (golden staph) my nuro took me off it and said same would happen with any other injections. Now only treating symptoms with steriods. Just finished 5 days. Feel horrible. Mouth ulcers yuck! Feel like I should be on something. Still staggering around. Very depressed.

]]> By: Stephanie http://scamparoo.wordpress.com/about-bonnie/#comment-769 Stephanie Tue, 28 Apr 2009 19:51:11 +0000 http://scamparoo.wordpress.com/about-bonnie/#comment-769 Thank you for posting all of this Bonnie. It helps to hear someone else's tale. I just posted on another blog of yours as well. I have been diagnosed for about a year now and have never been a part of any support groups or anything. I think it would be useful but haven’t had the time. Going to school full time, working full time and having a life unfortunately takes over. I was told in a clinical way as well, but I am sorry to hear that’s the way your doctor chose to handle it. That’s just not right! I have been taking Betaseron the entire time (I started about a month or so after being diagnosed). I had flu like symptoms every time I took it (every other day). I would wake up in the middle of the night with a fever and chills. I felt like this until about noon the next day. Since I had just started my new job, I wasn’t able to take any time off work. So of course this made it even more difficult. I was also put on Neurontin at first for my nerve pain, but stopped after a few months. It made me gain weight and made me extremely loopy. I currently do not take anything for my nerve pain, but am thinking I might need to. I am a runner and have a pretty active lifestyle now, so I don’t want anything that will affect this. Does anyone have any suggestions? Thank you for posting all of this Bonnie. It helps to hear someone else’s tale. I just posted on another blog of yours as well. I have been diagnosed for about a year now and have never been a part of any support groups or anything. I think it would be useful but haven’t had the time. Going to school full time, working full time and having a life unfortunately takes over.

I was told in a clinical way as well, but I am sorry to hear that’s the way your doctor chose to handle it. That’s just not right! I have been taking Betaseron the entire time (I started about a month or so after being diagnosed). I had flu like symptoms every time I took it (every other day). I would wake up in the middle of the night with a fever and chills. I felt like this until about noon the next day. Since I had just started my new job, I wasn’t able to take any time off work. So of course this made it even more difficult. I was also put on Neurontin at first for my nerve pain, but stopped after a few months. It made me gain weight and made me extremely loopy. I currently do not take anything for my nerve pain, but am thinking I might need to. I am a runner and have a pretty active lifestyle now, so I don’t want anything that will affect this. Does anyone have any suggestions?

]]> By: Bonnie http://scamparoo.wordpress.com/about-bonnie/#comment-755 Bonnie Sat, 18 Apr 2009 16:47:34 +0000 http://scamparoo.wordpress.com/about-bonnie/#comment-755 I have another blog that I have been posting to for the last three years. It has much more information on it. I am sorry but it has become a chore to attempt to post information to both blogs. Therefore, I have decided to quit posting to this blog and post exclusively to my older blog. The URL for my other blog is: http://multiplesclerosis.blogharbor.comPlease enter this new blog into your favourites. I usually post anywhere between 2 and 7 times a day to this other blog. You will find more information under Therapies. Where I have listed all of the current therapies and their side-effects and effacy. Bonnie Bonnie I have another blog that I have been posting to for the last three years. It has much more information on it. I am sorry but it has become a chore to attempt to post information to both blogs. Therefore, I have decided to quit posting to this blog and post exclusively to my older blog. The URL for my other blog is:
http://multiplesclerosis.blogharbor.comPlease enter this new blog into your favourites.
I usually post anywhere between 2 and 7 times a day to this other blog.

You will find more information under Therapies. Where I have listed all of the current therapies and their side-effects and effacy.

Bonnie
Bonnie

]]> By: Bonnie http://scamparoo.wordpress.com/about-bonnie/#comment-753 Bonnie Sat, 18 Apr 2009 16:27:02 +0000 http://scamparoo.wordpress.com/about-bonnie/#comment-753 By all means print out whatever you need to. Thank you for asking. Bonnie I have another blog that I have been posting to for the last three years. It has much more information on it. I am sorry but it has become a chore to attempt to post information to both blogs. Therefore, I have decided to quit posting to this blog and post exclusively to my older blog. The URL for my other blog is: http://multiplesclerosis.blogharbor.comPlease enter this new blog into your favourites. I usually post anywhere between 2 and 7 times a day to this other blog. Bonnie By all means print out whatever you need to. Thank you for asking.

Bonnie

I have another blog that I have been posting to for the last three years. It has much more information on it. I am sorry but it has become a chore to attempt to post information to both blogs. Therefore, I have decided to quit posting to this blog and post exclusively to my older blog. The URL for my other blog is:
http://multiplesclerosis.blogharbor.comPlease enter this new blog into your favourites.
I usually post anywhere between 2 and 7 times a day to this other blog.

Bonnie

]]> By: Phyllis http://scamparoo.wordpress.com/about-bonnie/#comment-742 Phyllis Tue, 14 Apr 2009 22:54:23 +0000 http://scamparoo.wordpress.com/about-bonnie/#comment-742 Hi Bonnie, I am the Multiple Sclerosis case manager at our facility. One of my pts. came in today with an exacerbation. I wanted to provide him with some information related to steroid use and came across your blog which is very thorough. Thank you for blessing others with this knowledge. Would you mind if I print out some of your information as a resource to give to my patients? Hi Bonnie,
I am the Multiple Sclerosis case manager at our facility. One of my pts. came in today with an exacerbation. I wanted to provide him with some information related to steroid use and came across your blog which is very thorough. Thank you for blessing others with this knowledge. Would you mind if I print out some of your information as a resource to give to my patients?

]]> By: CATHY GILLILAN http://scamparoo.wordpress.com/about-bonnie/#comment-740 CATHY GILLILAN Tue, 14 Apr 2009 15:47:57 +0000 http://scamparoo.wordpress.com/about-bonnie/#comment-740 I HAVE HAD MS FOR 15 YRS. I HAVE HAD 4 RELAPSES. THIS LAST ONE BEING THE WORSE. I WAS IN THE HOSPITAL FOR 5 DAYS TAKING STEROID IV'S EVERY 12 HRS. I HAVE ALWAYS ARGUED MEDS. REBRIF HAVS BEEN RECOMEND BY A NEW DR. LOOKS LIKE SIDE EFFECTS ARE WORSE THAN THE DISEASE ITSELF. I AM TRYING TO DECIDE WHETHER I SHOULD CONTINUE DRUG FREE OR START DRUGS. ANY SUGGESTIONS? I HAVE HAD MS FOR 15 YRS. I HAVE HAD 4 RELAPSES. THIS LAST ONE BEING THE WORSE. I WAS IN THE HOSPITAL FOR 5 DAYS TAKING STEROID IV’S EVERY 12 HRS. I HAVE ALWAYS ARGUED MEDS. REBRIF HAVS BEEN RECOMEND BY A NEW DR. LOOKS LIKE SIDE EFFECTS ARE WORSE THAN THE DISEASE ITSELF. I AM TRYING TO DECIDE WHETHER I SHOULD CONTINUE DRUG FREE OR START DRUGS. ANY SUGGESTIONS?

]]> By: Bonnie http://scamparoo.wordpress.com/about-bonnie/#comment-718 Bonnie Fri, 20 Mar 2009 16:59:54 +0000 http://scamparoo.wordpress.com/about-bonnie/#comment-718 thank you thank you

]]> By: Bonnie http://scamparoo.wordpress.com/about-bonnie/#comment-709 Bonnie Fri, 20 Mar 2009 16:39:13 +0000 http://scamparoo.wordpress.com/about-bonnie/#comment-709 Some people only take a few months for Copaxone to work its wonderes. But, for me it took about 6 months. I am sure that the reason it took so long for me is because I skipped injecting myself ever now and again. Bonnie Some people only take a few months for Copaxone to work its wonderes. But, for me it took about 6 months. I am sure that the reason it took so long for me is because I skipped injecting myself ever now and again.

Bonnie

]]> By: John M http://scamparoo.wordpress.com/about-bonnie/#comment-708 John M Fri, 20 Mar 2009 05:50:42 +0000 http://scamparoo.wordpress.com/about-bonnie/#comment-708 I am sorry your first doctor was an insensitve jerk! I cannot beleive he would do that. I am experiencing fluxuating pulsing tingling that moves around hand to hand, arm to arm, foot to foot. Sometimes I get an electical rush from my shoulder blades to my face. I don't know if you ever expereinced that warm, tingly goose-bump feeling sensaton when you connect with another person, but that is what I am feeling. Comments? Go ahead anyone and send to my email address. Thanks! I am sorry your first doctor was an insensitve jerk! I cannot beleive he would do that.

I am experiencing fluxuating pulsing tingling that moves around hand to hand, arm to arm, foot to foot.

Sometimes I get an electical rush from my shoulder blades to my face. I don’t know if you ever expereinced that warm, tingly goose-bump feeling sensaton when you connect with another person, but that is what I am feeling.

Comments? Go ahead anyone and send to my email address. Thanks!

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